 State-of-the art science is required to investigate the research gaps and complexities of maternal-fetal transmission of Lyme and will require a collaborative, disciplinary, multi-stakeholder ‘relay-team’ approach, which values an integrative model of bringing together patients with lived experience, front-line clinicians, clinical researchers, Government officials and scientists to collectively identify, propose and carry out further investigation. Lyme Disease & Pregnancy: State of the Science & Opportunities for Research - April 29, 2021 Agenda: Start – 10:00 Lyme Disease and Pregnancy: Why Research is Urgently Needed. Isabel Rose, Chair, Mothers Against Lyme and Board Member, Project Lyme 10:15-33:00 Epidemiology and Pathobiology of Lyme Disease: Implications for Research. Holly Ahern MS, MT(ASCP): Associate Professor of Microbiology, SUNY Adirondack. 34:30- 1:04 Maternal-Fetal Transmission of Lyme Disease: Research Gaps and Opportuities. Sue Faber, RN, BScN: Co-Founder and President, LymeHope. 1:05:15-1:11 NIH Research Opportunities for Maternal and Pediatric Infectious Diseases. Nahida Chaktoura, MD, Maternal and Pediatric Infectious Diseases Program Officer, National Institute of Child Health and Human Development (NICHD). 1:11:40-1:20 Advancing Research for Tickborne Diseases: Guidance and Resources for Investigators. Maliha Ilias, PhD, Lyme Disease Program Officer, National Institute of Allergy and Infectious Disease (NIAID). 1:21-end – Q&A 
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 A ground-breaking research study on Lyme and Pregnancy has launched, led by Canadian Principal Investigator Dr. Elizabeth Darling and team from the McMaster University Midwifery Research Centre.
LymeHope is honoured to partner and collaborate in this important endeavour, facilitating the 'birth' of a new era of research focused on assessing perinatal (mother-to-baby) transmission of Lyme disease - the first North American research into this alternate mode of transmission in 25 years! Research is open to US, Canada and Globally. Detailed information and how to participate here: https://www.lymehope.ca/news-and-updates/ground-breaking-lyme-and-pregnancy-research-launches "We are taking a stand against an escalating threat [of Lyme disease in Canada], and we are doing so by taking a very powerful weapon to that table.. and that weapon is science." "one of the unique things we offer in this lab is a clinical academic pipeline and that's what really sets us apart. What we are trying to develop here is this idea that we are going to be working with patients as stakeholders and collaborators in research and that we're studying the conditions that they find relevant..." "We don't want to do research that doesn't have clinical significance, we want to bring something to the clinic that will impact the health of Canadians." – Dr. Melanie Wills, PhD, Director, the G. Magnotta Lyme Disease Research Lab, University of Guelph Attached is a fantastic (3 minute) video featuring Dr. Melanie Wills, an incredibly brilliant and dedicated scientist and Director of the G. Magnotta Lyme Disease Research Lab at the University of Guelph. Dr. Wills has a PhD in molecular and cellular biology with post-doctoral studies in Lyme Borreliosis.
Rossana Magnotta, CEO and co-founder of Magnotta Wines, tragically lost her husband Gabe, to Lyme disease. Rossana has already made a huge contribution to Canadian health by supporting and bringing the G. Magnotta Lab to life, and continuing to speak out and advocate for scientific research on the subject of Lyme disease that will be patient-centred. This means not just studying ticks, but also the humans who are suffering, with a goal of improving the lives of those with these under-diagnosed, under-recognized and debilitating diseases. The G. Magnotta lab is also a member of a new, national research network called the Canadian Lyme Consortium (CLC) which is a volunteer team of Canadian scientists and stakeholders coast to coast dedicated to ethical, transparent and patient-centred research on Lyme disease in Canada. We truly believe that Canada can and will be a global leader in the recognition and transformation of the diagnosis, testing, treatment and management of Lyme & related diseases. When you pick up your favourite wines this summer, consider trying some of the wonderful wines from Magnotta Winery. It’s a great way to support a Canadian business hiring Canadian workers, AND say thank you to the Magnotta family for their efforts to protect and heal Canadians from the rising threat of Lyme & related diseases in Canada. More about the G. Magnotta Foundation and the research lab here: https://www.gmagnottafoundation.com/our-lab/ Initial CLC Website here & sign up to receive updates: http://www.clymec.ca/ The Canadian Lyme Consortium - CLCThe Canadian Lyme Consortium is a research network that will serve as a platform for:
CLC website: http://www.clymec.ca  LymeHope is fully aligned with the Canadian Lyme Consortium as it is committed to meaningful patient engagement. We believe that the CLC research will:
Our motivation is to empower patients to understand the implications and give informed consent. Full disclosure: LymeHope has been invited to participate in the CLC as a patient representative. LymeHope has made the decision to support the CLC. Our goal here is to provide information, to be transparent about LymeHope’s decision and reasons, as well as provide guidance to patients as to how to evaluate and make their decision whether and how to get involved. Aside from participating in and supporting the CLC, we have no financial ties or conflicts of interest to disclose. CLC Partners Include:The Mount Allison Lyme Research Network Dr. Vett Lloyd, member of the Canadian Lyme Consortium leads the The Mount Allison Lyme Research Network which is an interdisciplinary group of researchers in the sciences, social sciences and humanities, jointly supported by Mount Allison University and the Canadian Lyme Disease Foundation. https://www.mta.ca/Community/News/2017/May/Mount_Allison_establishes_Lyme_Research_Network/ Global News Clip here: https://globalnews.ca/news/3429932/mount-allison-university-researchers-establish-lyme-research-network/ G. Magnotta Lyme Disease Research Lab Dr Melanie Wills, member of the Canadian Lyme Consortium leads the G. Magnotta Lyme Disease Research Lab https://news.uoguelph.ca/2017/06/lyme-disease-grant/ CTV news clip regarding Dr Wills and Lyme Research here: https://www.ctvnews.ca/video?clipId=1173246&playlistId=1.3515213&binId=1.811527&playlistPageNum=1&binPageNum=1&hootPostID=399603049e572265f8265407b6128e5 |
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April 2021
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