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Ground-Breaking Lyme and Pregnancy Research Launches!

9/27/2020

10 Comments

 
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A ground-breaking research study on Lyme and Pregnancy has launched, led by Canadian Principal Investigator Dr. Elizabeth Darling and team from the McMaster University Midwifery Research Centre.  LymeHope is honoured to partner and collaborate in this important endeavour, facilitating the 'birth' of a new era of research focused on assessing perinatal (mother-to-baby) transmission of Lyme disease - the first North American research into this alternate mode of transmission in 25 years! 

This research leads with principles of patient engagement - which seeks, values and welcomes the perspective and priorities of people with lived experience.   For decades, mothers, healthcare providers and advocacy groups have been expressing concern regarding maternal-fetal transmission of Lyme disease and voicing concerns about the short and long-term health impact of this alternate mode of transmission on babies and children.  This research re-opens the door to this issue and 'gives voice' to those who have been impacted.

The online survey and opportunity to participate in online focus groups will be open to anyone living in Canada, the Unites States, or globally. This project will lay the groundwork for further research on perinatal transmission of Lyme disease.  

​In addition to recruiting people who have Lyme Disease, the study needs people who DO NOT HAVE LYME but have at any time been pregnant to participate in a survey. If you have ever been pregnant, completing the survey will help contribute to needed research about Lyme Disease and Pregnancy.
The survey is available in both English and French.

How can I participate in this research? 
For detailed information, specifics on this study and criteria to participate, please click button below:

French version:
Enquête sur la maladie de Lyme pendant la grossesse
French posters to download and share on social media
lyme_poster_image_fr__3_.png
File Size: 380 kb
File Type: png
Download File

lyme_social_media_image_fr__3_.png
File Size: 172 kb
File Type: png
Download File

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English version:
Health Outcomes of People with Lyme Disease During Pregnancy Study
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English posters to download and share on social media
lyme_social_media_image_v2_20july2020.png
File Size: 188 kb
File Type: png
Download File

lyme_poster_image_v2_20july2020.png
File Size: 399 kb
File Type: png
Download File

Please join us in spreading the news and sharing this important study opportunity through your networks/social media platforms to recruit eligible participants for the study.  Posters below can easily be downloaded and shared through various social media platforms (Facebook, Twitter, Instagram), websites, medical/health practitioner offices and newsletters.
10 Comments
Allie Foos
9/28/2020 07:13:21 pm

Get my survey that I filled out I did the whole questionnaire for the Lyme pregnancies? I don’t think I submitted it right :(

Reply
Katie M
9/29/2020 03:49:23 am

Hi Allie,

I am the research assistant for this project. If you made it to the end of the survey then we will have your responses, even if you didn't press "submit". If you have any questions or concerns, you can reach me at mackenzr@mcmaster.ca!

Reply
Tara
9/29/2020 04:40:48 pm

Thank you so so much for doing this study!! It is so desperately needed! I have 3 CDC+ congenital Lyme kiddos. It feels good to finally be heard.

Reply
Kristina Bauer link
10/2/2020 11:20:37 am

Thank you for doing this necessary research!

Reply
Karen Vanderhoof-Forschner link
10/7/2020 09:03:27 pm

Be careful of Canadian privacy laws imposed by European Union.

Karen
Lyme disease Foundation, USA.

Reply
Silvana
11/17/2020 11:32:20 pm

Hi there, we are also desperately in need for better understanding&care here in Europe.
Ik hope that due to research like this things will change &look brighter for (chronc) lymepatients all over the world in the nearby future .
Thank you for all work &research!💚

Reply
Leanne
11/27/2020 01:58:23 am

Can I participate as an Australian?

Reply
Sue Faber
11/27/2020 05:59:05 am

Yes, the research opportunity is open to any Country!

Reply
Brianna Simmons link
3/4/2021 09:08:49 am

Hi thanks for possting this

Reply
Ellie Kraft
7/6/2022 07:12:28 pm

Are you still looking for participants?

Reply



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