A ground-breaking research study on Lyme and Pregnancy has launched, led by Canadian Principal Investigator Dr. Elizabeth Darling and team from the McMaster University Midwifery Research Centre. LymeHope is honoured to partner and collaborate in this important endeavour, facilitating the 'birth' of a new era of research focused on assessing perinatal (mother-to-baby) transmission of Lyme disease - the first North American research into this alternate mode of transmission in 25 years!
This research leads with principles of patient engagement - which seeks, values and welcomes the perspective and priorities of people with lived experience. For decades, mothers, healthcare providers and advocacy groups have been expressing concern regarding maternal-fetal transmission of Lyme disease and voicing concerns about the short and long-term health impact of this alternate mode of transmission on babies and children. This research re-opens the door to this issue and 'gives voice' to those who have been impacted.
The online survey and opportunity to participate in online focus groups will be open to anyone living in Canada, the Unites States, or globally. This project will lay the groundwork for further research on perinatal transmission of Lyme disease.
In addition to recruiting people who have Lyme Disease, the study needs people who DO NOT HAVE LYME but have at any time been pregnant to participate in a survey. If you have ever been pregnant, completing the survey will help contribute to needed research about Lyme Disease and Pregnancy.
The survey is available in both English and French.
How can I participate in this research?
For detailed information, specifics on this study and criteria to participate, please click button below:
French posters to download and share on social media
English posters to download and share on social media
Please join us in spreading the news and sharing this important study opportunity through your networks/social media platforms to recruit eligible participants for the study. Posters below can easily be downloaded and shared through various social media platforms (Facebook, Twitter, Instagram), websites, medical/health practitioner offices and newsletters.
9/28/2020 07:13:21 pm
Get my survey that I filled out I did the whole questionnaire for the Lyme pregnancies? I don’t think I submitted it right :(
9/29/2020 03:49:23 am
9/29/2020 04:40:48 pm
Thank you so so much for doing this study!! It is so desperately needed! I have 3 CDC+ congenital Lyme kiddos. It feels good to finally be heard.
10/2/2020 11:20:37 am
Thank you for doing this necessary research!
10/7/2020 09:03:27 pm
Be careful of Canadian privacy laws imposed by European Union.
11/17/2020 11:32:20 pm
Hi there, we are also desperately in need for better understanding&care here in Europe.
11/27/2020 01:58:23 am
Can I participate as an Australian?
11/27/2020 05:59:05 am
Yes, the research opportunity is open to any Country!
3/4/2021 09:08:49 am
Hi thanks for possting this
7/6/2022 07:12:28 pm
Are you still looking for participants?
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