Perinatal transmission of Lyme disease was the focus of a June 2022 scientific think-tank at the Banbury Centre at Cold Spring Harbor Laboratory which was funded by the Cohen Foundation. Meeting organizers included Dr. Monica Embers, Dr. Charlotte Mao and Dr. Liz Darling and Sue Faber of LymeHope.
Invited experts included clinicians, researchers, experts in government, patient advocates and representation from funding agencies. An agenda of this meeting has been posted by the Banbury Centre.
As a result of this meeting we have identified clear action items and are in the process of writing a report which will be published. More about the Banbury meeting can be found by watching the panel presentation for the Cohen Foundation 2022 panel The Value of Partnerships: A Multi-disciplinary Approach to Addressing Perinatal Transmission of Lyme disease.
On March 4, 2023, Sue Faber (President and Co-Founder of LymeHope) presented a talk titled: Perinatal Transmission of Lyme disease: A Path Forward, for the LivLyme Foundation Summit. A downloadable resource with an introductory letter, as well as comprehensive document laying out all the evidence, citations and more, to accompany this presentation can be found here:
We have recently updated our website to provide more information on Lyme disease and Pregnancy which can be found in our 'what is Lyme' section. The LymeLight Foundation has produced several videos interviewing families impacted by congenital Lyme disease. Hearing the stories of those directly impacted is powerful and important.