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  • About Us
  • What is Lyme?
    • Lyme Symptoms - Adults and Children
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    • Lyme Disease and Pregnancy >
      • Evidence for maternal-fetal transmission of Lyme disease:
  • Research
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    • LymeVoice
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The Canadian Lyme Consortium

7/14/2018

6 Comments

 

The Canadian Lyme Consortium - CLC

The Canadian Lyme Consortium is a research network that will serve as a platform for:
Stakeholder engagement
  • Researchers (science, humanities etc.)
  • Clinicians
  • Patients, caregivers, advocates
Collaboration
  • Idea development
  • Concept mobilization
  • Study execution
  • Participant enrollment
  • Resource sharing
Knowledge exchange
  • Methodology
  • Best practices
  • Lived experiences
  • Results
  • Publications
​Consultation
  • Public policy
  • Media 
CLC website: http://www.clymec.ca
Picture
LymeHope is fully aligned with the Canadian Lyme Consortium as it is committed to meaningful patient engagement.  We believe that the CLC research will:
​
  1. Be ethical, transparent and unbiased,
  2. Be focused specifically on projects that will help patients and will be guided by patient feedback about top priorities, and
  3. Provide an opportunity for true partnership and participation by patients

​Our motivation is to empower patients to understand the implications and give informed consent.  
​

Full disclosure: LymeHope has been invited to participate in the CLC as a patient representative.  LymeHope has made the decision to support the CLC. Our goal here is to provide information, to be transparent about LymeHope’s decision and reasons, as well as provide guidance to patients as to how to evaluate and make their decision whether and how to get involved. Aside from participating in and supporting the CLC, we have no financial ties or conflicts of interest to disclose.

CLC Partners Include:

The Mount Allison Lyme Research Network

Picture
Dr. Vett Lloyd, member of the Canadian Lyme Consortium leads the The Mount Allison Lyme Research Network which is an interdisciplinary group of researchers in the sciences, social sciences and humanities, jointly supported by Mount Allison University and the Canadian Lyme Disease Foundation. 
https://www.mta.ca/Community/News/2017/May/Mount_Allison_establishes_Lyme_Research_Network/
Global News Clip here:

https://globalnews.ca/news/3429932/mount-allison-university-researchers-establish-lyme-research-network/

G. Magnotta Lyme Disease Research Lab

Picture
Dr Melanie Wills, member of the Canadian Lyme Consortium leads the G. Magnotta Lyme Disease Research Lab
https://news.uoguelph.ca/2017/06/lyme-disease-grant/
CTV news clip regarding Dr Wills and Lyme Research here:
https://www.ctvnews.ca/video?clipId=1173246&playlistId=1.3515213&binId=1.811527&playlistPageNum=1&binPageNum=1&hootPostID=399603049e572265f8265407b6128e5
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