Sue Faber and Jennifer Kravis, known by many as the ‘Lyme moms’, co-founded LymeHope in 2017, a Canadian not-for-profit dedicated to education and outreach on the subject of Lyme & related diseases in Canada. LymeHope has 3 primary goals: to provide education and outreach to patients, the general public, medical professionals, and to leaders across industries, to advance knowledge and support research into Lyme & related diseases, and to provide encouragement, hope and support to Canadian families struggling with the devastating effects of these disease and the challenges accessing care at home. Follow us on Twitter: @lymehopecanada and @lymemoms Please Like and Follow us on FaceBook: https://www.facebook.com/lymehopecanada/
May 30, 2018 - CTV National News coverage on Lyme Carditis and interview with Canadian cardiologist Dr. Adrian Baranchuk from Queens University, Sue Faber, RN, and Adam Flisikowski - 19 year old diagnosed with Lyme Carditis. Interviews and online information here: http://www.lymehope.ca/news-and-updates/ctv-national-news-lyme-carditis
Vision for LymeHope
Assisting in the development and dissemination of comprehensive, evidence based, up-to-date, Lyme educational tools and resources.
Creating a platform for individuals, families and communities affected by Lyme Disease, as well as interested health care professionals, to access education, resources, information and support.
Supporting Canadian Lyme research which values patient engagement in the development and implementation of evidence based research priorities.
Ensuring that the stories and suffering, the expertise and experience of Canadian Lyme sufferers will be heard, validated, acknowledged and acted upon.
Supporting a movement which would empower and unite Lyme sufferers, their care-givers, researchers, scientists and frontline healthcare professionals to work collaboratively and with transparency to identify and break down existing barriers and drive meaningful change for all Canadians.
Leading change which is anchored in hope and integrity.
Benchmark National Public Opinion Survey in Canada on Lyme Disease, 2017
Findings include: Approximately 4 million Canadiansreport that they or someone they know in Canada has been diagnosed with Lyme disease. Compared to the number of reported cases by the Public Health Agency of Canada for 2015 of 917 cases.
30% of Canadians have never heard of Lyme disease
Only 9% of Canadians say they “know a lot” about the disease
97% of Canadians are unaware this disease can be passed from mother to child during pregnancy
almost 80% of Canadians are generally concerned about getting Lyme disease.
Award-winning artist Tara Shannon affected by Lyme Disease aligns with not-for-profit LymeHope to help raise awareness in Canada.
Toronto, ON (May 07, 2018) - Award-winning adult contemporary artist Tara Shannon is proud to align with LymeHope, a not-for-profit organization dedicated to education and outreach on the subject of Lyme and related diseases in Canada. After being personally affected by the disease in recent months, this cause is close to the artist’s heart. LymeHope aims to raise awareness on the devastating disease affecting four-million Canadians. Known for supporting local and national charitable campaigns throughout her career, including the Butterfly Child project and Big Brothers and Big Sisters’BeYou, Tara looks forward to give her voice to LymeHope. For more information click below: https://mailchi.mp/c5a1fea942bd/award-winning-artist-tara-shannon-affected-by-lyme-disease-aligns-with-not-for-profit-lymehope-to-help-raise-awareness-in-canada
We ask YOU to join us in signing, commenting on and sharing our Canadian Lyme Petition which continues to be a powerful resource and tool in our ongoing advocacy and education efforts. Currently there are over 61,670 signatures from across Canada and over 14,000 eye-opening comments from every Province and Territory across Canada which collectively speak to the truth, reality and struggle of Lyme disease sufferers throughout the Country including issues related to: the lack of appropriate treatment, the poor testing, clear evidence of mother to child transmission and concerns of sexual transmission, the financial burden of having to travel outside of Canada for appropriate care, how animals receive better medical care for Lyme disease then their human owners. Petition link below: http://www.lymehope.ca/lyme-petition.html
Please note: We cannot offer tax receipts at this time. Click Link below to donate! Thank-you for your generosity and support!
We welcome YOU to join us as we continue with Lyme awareness, education and outreach. Please fill out the contact form above. Do you have skills, training or connections that could help us as we move forward, we would love to hear from you!
Our Hope for Every Canadian
a) be fully aware of the prevalence, severity and symptoms of Lyme and associated tick-borne infections including alternate modes of transmission b) have access to appropriate and reliable testing c) have access to healthcare professionals who are experienced in making clinical diagnoses of Lyme disease d) have access to patient-centred treatment and individualized care - for all stages of the diseases, whether acute or chronic e) not have to pay out of pocket or seek expertise outside of Canada for medical care.
Disclaimer: LymeHope is dedicated to education and outreach on the subject of Lyme and related diseases in Canada and run by volunteers. We provide free information and support services to patients and caregivers as well as members of the public. The information that LymeHope provides does not replace your relationship with your doctor and in no way is intended to constitute medical advice. The information is for your general use, so be sure to talk to a qualified healthcare professional before making medical decisions or if you have questions about your health. We encourage Internet users to be careful when reviewing any medical information on the internet. We do our best to make sure that the information we provide is accurate and reliable but cannot guarantee that it is error-free, complete or up to date. We include links to other organizations in Canada, U.S. and abroad for information purposes but we cannot endorse, recommend, authenticate or be held responsible or liable in any way for any information contained therein. LymeHope is not responsible for the quality of the information or services provided by other organizations and mentioned on lymehope.ca, nor do we endorse any service, product, treatment, medical professional or therapy.
