Breaking News: Canada Acknowledges Maternal-Fetal Transmission of Lyme Disease
This Picture: Left to Right - Steven Sternthal (Director General for Zoonosis Division), Dr. Howard Njoo (Deputy Chief Public Health Officer), Tamara House (Vice-President of Families and Children, LymeHope), Kim Elmslie (Vice-President Infectious Diseases Prevention and Control), Dr. Siddika Mithani (President, Public Health Agency of Canada), Jennifer Kravis (Co-Founder, LymeHope), Dr. Nick Ogden (Senior Research Scientist, Zoonosis Division PHAC), Jane Bailey (Lyme Advocate), Dr. Robbin Lindsay (Research Scientist PHAC, National Microbiology Laboratory) and Sue Faber (RN, Co-Founder of LymeHope). We were also joined via teleconference with Dr. Charles Ray Jones, (Pediatric Lyme Specialist, New Haven Connecticut), Dr. Ralph Hawkins (Internal Medicine Physician), Dr. Lisa Waddell (Epidemiologist with the National Microbiology Laboratory, PHAC) and Dr. Matthew Gilmour (Scientific Director General of National Microbiology Laboratory, PHAC).
Breaking News: Canada Acknowledges Maternal-Fetal Transmission of Lyme Disease!
“What is the value of one child’s life?”
As Canadians, we soon will be coming together to celebrate a cherished national holiday Thanksgiving. At LymeHope we are genuinely thankful for the incredible news which we will now share with you.
This news pertains to all Canadians suffering from or concerned about Lyme disease, but specifically those who are concerned about the issue of maternal-fetal (in-utero) infection also described as transplacental transmission. Lyme disease is not only transmitted through a tick-bite, it can be passed from human-to-human, mother to child in pregnancy as reported in the scientific and medical literature. https://www.lymehope.ca/advocacy-updates/march-03rd-2018
This morning we met with senior scientists and executive officials at our Federal Public Health Agency of Canada as part of our ongoing discussions about transplacental transmission of Lyme disease. We had started these discussions over 18 months ago with the Agency anchored in a respectful, transparent and collaborative approach – doors opened, we walked through them.
We were incredibly honoured to have U. S. Dr. Charles Ray Jones, MD, the world’s foremost expert in pediatric and adolescent tick-borne diseases join in this meeting. Dr. Jones shared his experience of treating over 30,000 children, from every continent in the world and every Province of Canada, over 60 years of practicing medicine and saving lives. He talked about the hundreds of congenitally infected children he has seen, and more importantly, how he has been able to cure them of their tick-borne diseases and allow them to live healthy lives. A short 1 minute video about Dr. Jones pioneering work here: https://www.youtube.com/watch?v=YsH5W3I0GM8
32 years ago, in 1988, our Public Health issued a bulletin stating that transplacental transmission of Lyme disease had been documented, and yet somehow, despite 30 years going by, the majority of Canadians and medical professionals remain unaware of this. Even worse, many experts have stated, to patients and publicly it “doesn't exist”. We have been determined to change this. https://www.lymehope.ca/advocacy-updates/health-and-welfare-canada-1988-report
Today, our senior most officials at Public Health acknowledged that transplacental transmission of Lyme disease can occur, AND that they will be updating their website to reflect this.
As mothers with suspected congenitally infected children, tears streamed down our face and hope rose in our hearts, that this truly is the beginning of a new era in Canada, a breath of fresh air. This means mothers who are told “maternal-child transmission of Lyme disease doesn't exist” can now update their medical teams of this acknowledgement by our very government, following on the heels of the recent acknowledgement of the World Health Organization. https://www.lymehope.ca/news-and-updates/world-health-organization-recognizes-congenital-lyme-borreliosis
We must urgently come together to do our very best thinking – an all hands-on-deck approach to research this alternate mode of transmission and help children and families currently affected, many of whom reach out to us personally on a day-to-day basis.
Each of you, through your signing and sharing this Petition, sharing your stories and comments, encouraging and touching our hearts, shares in this miraculous and well-deserved news. Thank you from the bottom of our hearts.
LymeHope is already taking active steps to engage and assemble a multi-disciplinary working group of interested medical experts, scientists and meaningful patient representation. We must now come together to re-examine this critical issue and help implement the necessary steps to create a new reality in Canada, where pregnant women and their medical professionals are aware of the risks of transplacental transfer and are taking steps to ensure our future generations are protected from these devastating diseases. Dr. Jones today said he would be honoured to be a part of this initiative.
We have promised our own precious children and indeed the children of Canada that we will not stop our work until the day when they all are able to walk into a doctor’s office and receive appropriate care and treatment. We are now a step closer to our dream becoming a reality.
There is much work to be done; however, today we want to share this wonderful news with you. As we gather with our friends and family this weekend, we will be giving thanks for many things, including this first important step in changing the lives of Canadian mothers, babies and children. We wish you a wonderful Thanksgiving weekend, and, as always, thank you for your continued engagement and support as change happens.
In closing, just as the two-hour meeting came to a close, Dr. Jones shared the last word. He asked, “what is the value of one child’s life?” Without hesitation he answered with these words. “It’s Priceless.”
We all agreed and so, we step forward with renewed hope.
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10/5/2018 03:48:05 pm
Many thanks to all of the wonderful, caring people who brought this to fruition. So many innocent people will be able to live a vibrant life because of your dedication and hard work.
10/5/2018 04:26:32 pm
God is good. Yes Canada. Make us proud
10/6/2018 04:24:18 pm
My whole family has Lyme and we believe it was passed down Mum to child. We are all grown up adults over 35 now and all suffer in varying degrees. Had we been checked in our earlier years it would have saved us a lot heart break in our adult life. Ignorance is not bliss - it hurts immensely.....but this is such a breakthrough and I am so glad!
10/13/2018 10:59:44 am
About time now we just need australia to wake up so our kids can get help and us mothers have a say in our childrens health
10/5/2018 08:14:13 pm
Thanks be to God.
10/5/2018 09:01:00 pm
maternal transmission to her unborn baby has been recognized !!!..KEEP going
10/6/2018 02:48:08 am
Fantastic success after what must have been a long and difficult journey. This will make a real difference for countless parents and children and hopefully will influence the world at large including the UK. Thanks for all the hard work to every member of the team and those that supported the work.
10/6/2018 05:02:46 am
There is finally light at the end of the tunnel,for all those suffering people.
10/6/2018 07:13:11 am
I pray this will give hope to all suffering and being refused care. Thank you to all concerned for their hard work.
10/6/2018 03:30:07 pm
This is encouraging news, thank you to everyone involved. Your hard work and determination is invaluable and offers hope. Besides updating their website, will FPHAC communicate this info to the CMA so that all registered physicians will be informed and obligated to treat/refer maternal child cases to appropriate personnel? As well, will the CMA then take responsibility by ensuring that physicians become “Lyme Literate” so that not only the unborn child & mother are treated, but every Canadian citizen experiencing Lyme disease will have access to competent medical care? Will diagnostic testing methods in Canada be aligned with best practices in Europe and USA?
10/11/2018 12:04:58 am
I had Lyme Disease. I was diagnosed in 1990 at age 32. It was barely recognized at the time in CA. I was very fortunate to be diagnosed (borderline positive) immediately and highly positively within 10 months. I received IV Rocephin some 18 months after initial diagnosis. After recovery period I've had no symptoms since! I actually studied who got well and how and found the doctors who would treat me. At age 32, my childbearing years, I knew that it was transmittable to unborn children. No way it can't be. It is such an important area of study. It weighed on me having children, which I did not do. Just recently I found a doctor who actually requested those "Lyme" records. I was bolstered just by the "concern" of someone wanting to grasp the impact on my now elderly brain. (My interpretation). It matters. It all matters. I feel that American Science is being so lost in the immediate stature of things. These long term "interests" are so very important. I applaude these studies and my heart is certainly with all of you. ANYTHING that promotes further research beyond the disqualifying attitudes that we so often have been met with. To more and more wellness and scientific endeavors. I certainly feel that American Medicine is at best "lost" and it helps me to hear of those relentless pioneers who continue the valid research into a devastating illness.
10/20/2018 07:55:21 pm
Stacy, do you remember what tests they used?
11/15/2018 07:50:07 am
This is such great news!! Great work everyone.
11/21/2018 03:01:13 am
My Wife was diagnosed of Lyme disease four years ago. She was so terribly sick. I think her worst complaint was the severe headache. She I was taken doxycycline hyclate 100 mg as treatment for Lyme disease, twice a day for 21 days. and didn’t seem to be improving. She did not display a rash or any kind of bull's eye. Diagnosis was from blood test. We tried every shots available but nothing worked.Her Lyme Disease got significantly worse and unbearable because of her cognitive thinking. In 2015, our physician advised we go with natural treatment and was introduced to Natural Herbal Gardens natural organic Lyme Disease Herbal formula, She had a total decline of symptoms with this treatment, the fever, joint pain, weakness, shortness of breath, and anxiety. and others has subsided. Visit Natural Herbal Gardens official website ww w. naturalherbalgardens .c om
2/2/2019 04:28:55 pm
I would like to be put on your newsletter list
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