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  • Home
  • About Us
  • What is Lyme?
    • Lyme Symptoms - Adults and Children
    • Diagnosis and Testing
    • Prevention
    • Safe Tick Removal
    • Lyme Disease and Pregnancy >
      • Evidence for maternal-fetal transmission of Lyme disease:
  • Research
  • News and Updates
    • LymeVoice
  • Resources

Inaugural LymeHope Benefit Concert with Tara Shannon and The Commotions

4/26/2019

3 Comments

 
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Please join us at the inaugural LymeHope Benefit Concert which features two of Ottawa’s top acts coming together for a musical event like none other.
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Hosted by Ottawa’s Tara Shannon, together with LymeHope founders Sue Faber and Jennifer Kravis, the evening offers a mix and mingle starting at 7pm where guests will have access to information about Lyme Disease and can speak with members of the Lyme community to learn more about the often misunderstood illness.

The musical celebration starts at 8pm with a performance by event host, country-soul singer/songwriter Shannon, who will share her own journey with Lyme through songs and stories. Special guests, The Commotions, Ottawa’s original 10 piece soul/funk/R&B band will bring the audience to their feet doing what they do best - “reclaiming the spirit of soul” as musical director Brian Asselin has so aptly stated...which is why they are a perfect fit for this event...as Lyme Disease sufferers and their families are often trying to reclaim theirs.

All proceeds will be directed to LymeHope. 
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Tickets available for purchase at:
https://nac-cna.ca/en/event/22170 ​

If you can't attend but wish to support LymeHope's work to advance education and research on the subject of Lyme & related diseases in Canada, you may donate on the homepage of our website: www.lymehope.ca
*Please note we cannot issue tax receipts at this time.

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ON Health Minister Christine Elliot to Meet Lyme Mom & her Experts!

4/10/2019

5 Comments

 
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HOPEFUL news about Lyme disease in Canada!

Today MPP Randy Hillier (Lanark-Frontenac-Kingston) addressed the Honourable Ontario Health Minister Christine Elliott on behalf of his constituent Jennifer Wheeler and her son Nicholas.  

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Watch and Listen to MPP Hillier’s question and Honourable Minister Elliot’s response here:
https://www.facebook.com/watch/?v=665863700512141

Nicholas is suffering from Lyme disease and his mom, Jennifer Wheeler and her husband Josh were reported to Children’s Aid by a doctor from CHEO after she was forced to seek treatment for her son outside of Canada and there was a disagreement with the course of treatment.  

The treatment the Wheeler's chose was what helped their son to improve his quality of life, and helped him to regain his health. Their doctor in Ontario who wanted to help was also inappropriately reported to the College of Physicians and Surgeons.  Both reports to CAS and the College were unfounded, and now Jennifer is working with CHEO, MPP Randy Hillier, LymeHope, MD's, RN's, Lyme advocates, and now the Honourable Minister of Health of Ontario Christine Elliott to put into place a pilot program aimed to improve diagnostics and treatment for those who face Lyme Disease.

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MPP Hillier stated: “Ontario’s health system often treats people with Lyme in a reprehensible and atrocious manner..”.
 
He asked Minister Elliott if she would meet Jennifer (and her team of professionals) “to discuss a pilot project to reform these outdated attitudes and harmful practices and help people who are suffering with Lyme disease”.

Some politicians are willing to listen and will take action!  Please consider thanking MP Hillier for raising such a critical issue and asking / encouraging your MPP to support this.
 
Action:
  1. Thank MP Randy Hillier by liking his video and leaving a message of support on his facebook and twitter page or emailing him directly at [email protected]
  2. Look up your Ontario MPP’s email here: https://www.ola.org/en/get-involved/contact-mpp
  3. Send an email to your MPP and copy to Honourable Christine Elliott, Health Minister ([email protected]) asking your MPP to support this patient-centred pilot reform project to enable access to treatment in Ontario.
  4. If you haven’t already, please sign, comment and share this Petition which now has over 83,000 signatures. http://bit.ly/2lfBuNL
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Use the template below (copy and paste into your email browser) – customize it or create your own with your own personal story.
 
Are you a Canadian outside of Ontario?  Do the same in your own Province.  Google “how to find [my Province] MPP/MLA email”. Share MPP Hillier’s video and ask your representative if they would consider asking your Provincial Health Minister the same question.
 
With Hope
Sue Faber, Jennifer Kravis, Tamara House

Sample Email:
 
Dear [MPP]
Cc: [email protected]
 
I am writing to let you know many of your constituents are also suffering from Lyme disease and are unable to access any care or treatment in Ontario due to outdated and insufficient guidelines.  This is an urgent non-partisan health crisis affecting many Ontarians, adults, children and babies alike.  It is also causing huge waste in our health system and putting all of us at risk.
 
Please join MPP Randy Hillier in calling for and supporting a pilot project led by the Honourable Christine Elliott, Minister of Health, which must involve patients and their experts, whose voices continue to be ignored in favour of the abysmal status quo.  It’s time for real change.
 
Sincerely,
 
[your name & contact information]
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