Exactly 1 year ago today I put my little boy to bed and he woke up a completely different person.
Although he was bit almost 6 months prior- it was 1 year ago today when it all actually hit the fan with Lyme disease.
1 year ago today he woke up limping with sore joints.
I remember he called me at recess because he had tried to go to school and got so weak when he fell down at recess he couldn’t get up.
Later that day he developed fevers, swollen cervical, auxiliary and groin lymph nodes. And on and on the dozens of symptoms came.
Although he isn’t as bad as he was a year ago- He has been in pain every single day for one year. I can hardly fathom. This boy has been fighting so hard.
And I couldn’t be prouder...
When he got sick I had just set up this Christmas tree in our room. He was unable to get to the bathroom in the middle of the night without help for months, and months. So he slept at the foot of our bed with this tree as his comfort.
When we took our Christmas decorations down he wasn’t better, so he asked us to leave the tree up until he wasn’t sick anymore.
We named it our tree of Hope and Strength.
We put all the cards in it that he was given. We promised we wouldn’t take it down until he was better.
Although he was able to move back to his room soon after he started having IV antibiotics- we kept the tree up in our room as a promise to him.
And a reminder for Marty and I to continue to fight for hope. Every day.
I can’t tell you how badly I want to put this tree away, because it will mean our boy no longer suffers.
Until that day, this Tree will light our hope into the darkness of the night❤️. - Lisa P.