Dr Miller is an experienced retired Mayo clinic trained physician who practiced Internal Medicine and Rheumatology in San Antonio for 40 years and worked as clinical faculty at the University of Texas Health Science Centre as Full Professor. This short and informative 4-part series is certainly a worthwhile watch.
He became interested in Lyme disease after his daughter in law was diagnosed with MS/ALS at the age of 43 and as he started to ask questions and connect the dots - he started to dig further into the clinical and scientific literature. He discovered that she was actually suffering from Lyme disease even though her Lyme test was reported as negative. He delves into the issues surrounding the current Lyme testing - used both in the US and in Canada - which is a two step process and is failing many patients resulting in misdiagnosis.
The first step is an ELISA test - if this test is negative, the second test isn't done and the patient is declared to be negative. Dr Miller reviews the reasons why the Lyme testing is inadequate and more comprehensive testing needs to be done with an understanding of how to properly interpret the findings. He has become vocal in speaking out and educating other doctors and frontline practitioners about what he discovered as a means of preventing other patients from being misdiagnosed.
Dr. Miller is an amazing physician with a desire to reach out and help as many others as possible - which indeed is what we all must do when we discover important truths that have the potential to impact the lives and futures of many.
Exactly 1 year ago today I put my little boy to bed and he woke up a completely different person.
Although he was bit almost 6 months prior- it was 1 year ago today when it all actually hit the fan with Lyme disease.
1 year ago today he woke up limping with sore joints.
I remember he called me at recess because he had tried to go to school and got so weak when he fell down at recess he couldn’t get up.
Later that day he developed fevers, swollen cervical, auxiliary and groin lymph nodes. And on and on the dozens of symptoms came.
Although he isn’t as bad as he was a year ago- He has been in pain every single day for one year. I can hardly fathom. This boy has been fighting so hard.
And I couldn’t be prouder...
When he got sick I had just set up this Christmas tree in our room. He was unable to get to the bathroom in the middle of the night without help for months, and months. So he slept at the foot of our bed with this tree as his comfort.
When we took our Christmas decorations down he wasn’t better, so he asked us to leave the tree up until he wasn’t sick anymore.
We named it our tree of Hope and Strength.
We put all the cards in it that he was given. We promised we wouldn’t take it down until he was better.
Although he was able to move back to his room soon after he started having IV antibiotics- we kept the tree up in our room as a promise to him.
And a reminder for Marty and I to continue to fight for hope. Every day.
I can’t tell you how badly I want to put this tree away, because it will mean our boy no longer suffers.
Until that day, this Tree will light our hope into the darkness of the night❤️. - Lisa P.
What we know to be true from these personal testimonies is this: there is a Lyme crisis all across Canada, which only continues to grow. We also know that the patients who suffer - they are the experts.
The Federal Lyme Framework which was finalized in May 2017 neglected to include the Voice of the patients and indeed, this patient voice is absolutely critical to understand the complexity of Lyme disease. Evidence based medicine invites patients’ values and preferences alongside clinical judgement and relevant scientific evidence - who better to ask than the ones who suffer each and every day.
If you want to understand the Truth about Lyme disease, please, take the time to watch these videos and step into the stories of Canadians who were brave to speak out with Hope that their collective Voice would be heard, acknowledged and Action taken. Thanks to CanLyme for recording these important Testimonies.