This is such a powerful video of an Alberta family as they faced challenges navigating 'uncertain waters' of Lyme disease with their son. In the midst of oceans of conflict and controversy, 'feeling like we were watching our son sink below the water while the life-guards on shore were respectively debated whether he was actually drowning..' And then there was a break-through..and Hope.
Lisa (the mom) has now been called as a patient advisor for Alberta Health services and continues to speak out, sharing the story of their family, and furthermore, opportunities to engage with healthcare providers - opening new avenues for partnership and collaboration in the midst of uncertainty. Her comments below the video:
"I have the honor of being a patient advisor for over a year now with Alberta Health Services, and the chance to partner with multiple Health Care Teams on a few projects. Last year, I was asked to be part of a project upon where 10 digital stories were created, and my family's story was selected to be one of those.
The purpose of the video was to share it to Health Care Employees in our Province, and discuss 3 questions at the end in hopes to gain nuggets of wisdom that they can use when practicing / working in their own professions.
While it is difficult to be vulnerable like this we hope that by sharing our story, others will be inspired to keep learning, advocating and finding the health care they need for themselves/ their loved ones. Having something "uncommon" in our health care system is very difficult, no matter what the disease and we wanted others to know they are not alone. Keep knocking on doors to find Health Care Providers who want to work with you- and learn with you.
We are forever grateful for our Health Care Providers who have kept open minds and have been willing to research, collaborate and work together." - Lisa