Action Requested: Ontario Government Seeking Comments on Draft Lyme Educational Materials:
The Ontario government has issued 2 draft educational materials on Lyme disease - they are calling for public input on the materials until midnight Monday, April 16th.
Your feedback is needed and appreciated.
You do not need to live in Ontario to participate.
The documents and the online feedback form can be found here: https://www.surveygizmo.com/s3/4264305/Lyme-Disease-Guidance-Documents-Feedback-Survey
Concerns with Clinical Guidance Document:
The biggest concern with the Clinical Guidance document (the flow chart) is that it reinforces many of the “Lyme myths” and is not equipping physicians to properly recognize, diagnose and treat Lyme disease and Co-Infections. There are numerous issues, but some of the most serious flaws are:
Furthermore, the most up to date treatment guidelines (2014) for Lyme disease published by the International Lyme & Associated Diseases Society (ILADS) state: “The potential harms of the single-dose oral doxycycline prophylactic regimen and the magnitude of those harms significantly outweigh its benefits”, and “Clinicians should not use a single 200 mg dose of doxycycline for Lyme disease prophylaxis.” (ILADS Guidelines, Recommendation 1a).
Click below to read why Dr. Elizabeth Maloney and Dr. Daniel Cameron, who both have diagnosed and treated hundreds of Lyme patients, recommend against the single-dose strategy.
Dr David Volkman, Ph.D., M.D. Emeritus Professor of Medicine and Pediatrics SUNY, Stony Brook, NY Background: Board certified in Immunology, Diagnostic Laboratory Immunology, and Internal Medicine, and Board Eligible in Infectious Diseases - speaks to his concerns about the single dose doxy and other issues in a paper he wrote several years ago - these concerns remain relevant today.
Concerns with Public Fact Sheet:
Some of the concerns with the Public Fact Sheet:
Patients, family members, friends, and human/animal health care providers – everyone from any country – is encouraged to comment! Your feedback is needed to change the way physicians treat Lyme disease and to ensure the public is properly informed! Please share and share again!
You can also share feedback by participating in a virtual Town Hall Meeting which will be set up by the Government of Ontario – details will be shared as they become available.
Thank you as always for your continued engagement and support.
Jennifer Kravis, BA, LL.B & Sue Faber, BScN, RN