LymeVoice - Our stories
My name is Eryn. I am a 17 year old teenager who has been robbed of my life. In August of 2014, I got a “summer cold” which rapidly developed into a severe debilitating illness. I had been a kid who constantly performed in plays and rarely spent time at home, because I was excitedly living and enjoying life. I am still that person, deep down, but I don’t feel like it anymore.
I am a 17 year old teenager who spends every single day trapped in my bed. I haven’t left the house in 5 months. I can’t go to school, I can’t go out to see friends, I live in constant pain and agony. I cannot walk, I cannot push myself in my manual wheelchair. Most days I struggle just to sit up. I have seizures. I have migraines so bad I have to wear sunglasses in the dark. Yet no doctor’s want to help me.
I am constantly told by medical “professionals” that I am making this up for attention. I am told that I simply need to see a psychiatrist, hang out with friends, and exercise more. What great advice, telling a person who can’t even go to the bathroom on their own that they need to exercise. The medical world has robbed me of my life, shackled my arms to my legs, and thrown me in the ocean and left to drown. Or more literally speaking, thrown in my bed and left to die.
Every single day I am fighting for my life. I am fighting to breathe, fighting to stay alive. It would be so much easier to give up. All the doctors around me have given up already. They gave up without even trying to help. They left me in my room to fend for myself, because apparently they don’t believe that I’m worth fighting for. I am still human. I am a person who lives every day in PAIN. I am SUFFERING. I am DYING. My body is a prison cell that I cannot escape from, and I have been wrongly imprisoned. I have done nothing to deserve this wasted shell of a life. This isn’t a life. No one should be forced to call this hellscape a life.
I urge you, PLEASE help me. PLEASE help me and others like me going through the same thing. I am not alone, I am not the only person fighting this daily, neverending battle. Both my siblings are fighting this disease, my aunt is fighting this disease, my cousin is fighting this disease. Lyme Disease is NOT RARE. It is COMMON and the ignorance from the medical profession is CRIMINAL. Lyme Disease is NOT a fake disease. It is a REAL, DEBILITATING, CHRONIC DISEASE. It is a demon that haunts thousands upon thousands of people every single day. We should not be forced to wait for years for doctors to catch up. We are HUMAN BEINGS and should be treated as such. I should not be forced to live my life this way. No one should."